Legislation: Laws, Bills and Recommendations

Note: This page is no longer being updated as we work closely with our friends at the Newborn Foundation to help keep their CCHD Screening Map up to date. It’s a wonderful resource, so please visit the CCHD Screening Map for current updates.

The Secretary’s Advisory Committee on Heritable Diseases in Newborn and Children recommended in October 2010 that pulse oximetry screened for CHD be added to the uniform newborn panel.

In April 2011, Secretary Kathleen Sebelius answered that recommendation and gave the Interagency Coordinating Committee on Newborn and Child Screening 90 days to further review any evidence gaps and develop a plan for implementation.

In September, 2011, Secretary Sebelius accepted that recommendation for adoption of pulse oximetry screening to the universal newborn panel. This doesn’t mean that states must start screening, but does set up  federal support.

States with Laws

Maryland

Final Bill Wording

Fiscal Statement

New Jersey

Law

Indiana

As part of House Act 1001, Indiana passed pulse oximetry screening.

Pulse oximetry screening is now included in the Indiana code.

The original bill language.

Fiscal statements  1, 2

Indiana Screening Protocols

Indiana FAQ for Professionals

Tennessee

This state introduced bills in the House and Senate, and the governor signed pulse ox into law April, 2012.

West Virginia

HB 4327 was introduced in January 2012 and signed into law April 2012.

New Hampshire

Parker’s Law was signed into law June 2012

Connecticut

Bill 56 was signed into law Spring 2012

California

Assembly Bill 1731 introduced 2/16/2012.

Fiscal Note

Signed into law September, 2012

Kentucky 

S.B. 125

Signed into law March, 2013

South Dakota

S.B. 168

Signed into law March, 2013

Utah

HB 0276

Signed into law March, 2013

North Dakota

SB 2172

Oklahoma

SB851

Signed into law April, 2013

Florida

Added as part of omnibus bill, signed May 2013

Iowa

Added in appropriations bill, April 2013

Minnesota

Added in omnibus bill, May 201

Nebraska

L.B. 225

Oregon

SB 172

Nevada

S.B. 92

Arkansas

H.B 1468

South Carolina

S341 Emerson Rose Act

States with Executive Orders

Virgina

Executive order to establish work group

 States Adding CCHD Screening to Newborn Panel (Regulation or Rule Change)

Pennsylvania*

CCHD screening will begin in March 2013. 

Minnesota*

CCHD screening was added by vote of the department of health to the newborn screening panel.

Delaware

Kentucky*

Screening started this year.

Florida*

*Legislation also passed

Alabama

March 2013

 States with Current Bills

Illinois

HB 2661

New York

Assembly Bill 2316 – Introduced January 14, 2013

Senate Bill 270 – Introduced January 9, 2013

Texas

S.B. No. 253

H.B. 392

H.B. 740

Missouri

H.B. 274, Chloe’s Law

S.B. 230

Hawaii

HB0905

SB1136

North Carolina

H.B. 105

Massachusetts

House Bill 505

Senate Bill 1008

Ohio

S.B. 4

Maine

L.D. 460

Pennsylvania

HB 809

 Alaska

HB 184

Wisconsin

SB 104

Louisiana

 HB322

States with Previous Bills

Minnesota

H.F. 3008 was introduced in 2012

Missouri

Chloe’s Law was introduced in 2010 and 2011, and also 2012. 

Nebraska

Bill introduced in 2011

Virginia 

House Bill 399 passed the House and Senate, but was vetoed by the governor.

Mississippi

2013 bill (died in committee)

2005 Bill

Wisconsin

A bill was introduced on 2/23/2012.

Florida

Florida introduced SB 1052 in December 2011.

Alabama

Senate bill 39 was introduced commending the Department of Health on work with CCHD screening. Implementation is voluntary, however the department will reportedly make a regulation change for mandatory screening starting in 2013. 

Pennsylvania

The James Matthew Mannix Bill was introduced in the State Senate in July 2011. A House Bill was introduced in March, 2012.

Also refer to the Pulse Ox Advocacy Facebook page for breaking news.